Wednesday, July 9, 2008

peanut allergy info

Ok, so today I went to get educated about Thomas' peanut allergy. I feel pretty informed on the egg allergy but I needed more info on the milk one and especially the peanut allergy.
It was really informative and quite scary.

Here is a summary of what I gathered:

1) If Thomas ever comes in contact with peanuts (nuts/candy with nuts/peanut butter), we need to give the epi pen 1st, put the dissolvable benadryl in his cheek, and call the ambulance. Even if he doesn't have a reaction at first, she says it is better safe than sorry and easier to save his airway if we do it immediately rather than wait to see if he will react. This is so very hard for me to imagine doing. With Jeremiah, we give benadryl if we see hives and watch for a more sever reaction, but all he has ever had is hives, which benadryl clears up. I cant imagine giving Thomas a shot of epinephrine and going to the ER, without him ever having a reaction. But, that is what the Doctor told me to do.
2)We have to completely rid our house of peanuts and tree nuts. Anything with them in it or made on the same equipment or in the same factory even. That means Jeremiah is no longer allowed to eat it in our house or any time he could remotely come in contact with Thomas.
Jeremiah is also now allergic to walnuts, so we can not do tree nuts as well. That includes no hand dipped ice creams, since one with nuts may have been scooped before one without and cross contaminated. No bakeries, no buffets, no sprinkles.
3)We have to work really hard to get Winnie the Pooh and our church to be a peanut free zone. If other kids eat and then play and Thomas comes in contact with peanut-butter and rubs his eyes or puts his hand in his mouth, he could react. If it is on any of Jermiah's clothes or bag or shoes and Thomas comes in contact with it, he could react. I also need to work to have them get into a habit of washing their hands and faces after eating, rather than just before, to prevent any cross contamination.
4) I am going to have to start cooking more. Peanuts and tree nuts are hidden in lots of things. It is near impossible to know for certain if what we eat out is safe, therefore we need to steer on the cautious side and not risk it. That, in and of itself will be a challenge. I will need to come up with new ideas for snacks, that don't include milk, eggs, peanuts or any other nuts. That should be fun! No more eating out Asian, for sure, as they use lots of nuts in the food and oil.
5) We have to have our epi pens, benadryl, and emergency plan ready at all times, have people know where to find them and how to use them. It will make it really hard to leave Thomas with a sitter, grandparent or daycare and feel comfortable about it.
6) We will have to hope Thomas will be as outspoken as Jeremiah about his allergy and not be shy about it. He will really need to be one to ask if things are safe to eat or come and ask me and not just eat something someone gives him. This will be really hard at gatherings where people think they are helping you out by feeding your kid. Feeding my kid could be hazardous to his health. That is scary.

We just pray that Thomas never has an anaphylactic reaction to peanuts or Jeremiah to walnuts, but you have to be safe and prepared just in case.

1 more thing- they passed a law saying that the 5 main allergens had to be labeled(milk/soy/egg/peanut/wheat) HOWEVER, if it is listed in the list of main ingredients as its main name (milk), it doesn't have to be re-listed in the BOLD list at the bottom of the ingredients. This means you have to read the entire list of ingredients, not just scan the bold list. This was new info to me. I thought if it had eggs, it would say in the bold, but if it is listed as egg white, it may or may not be re-listed as EGG in the allergy list. So, you have to be very careful!!!
Things to also avoid with an:
egg allergy: albumen, egg white, dried egg, powdered egg, egg white, mayonaise, meringue, pasta, marshmallows, nougat, lechithin
milk allergy: casein, butter, cheese, cream, custard, yogurt, phosphate, whey, sour cream, nougat, pudding, milk in all forms-condensed/dry/evaporated/malted/powder/skim/whole
peanut/tree nuts: artificial nuts, beer nuts, goobers, ground nuts, nut pieces/mixed nuts, peanut butter/ peanut flour, any asian dishes, baked goods, egg rolls

27 comments:

Anonymous said...

My daughter has a peanut allergy too - it's scary at first and then you just live day by day (just like with your other son's allergy to walnuts). She used to have a tree nut allergy but thankfully has outgrown it - so keep thinking positive and be as vigilant as possible about avoidance. Our doctor didnt tell us to use the epi first. What is Thomas's RAST level? Again, hang in there. Sounds like you have a GREAT allergist - so thorough!

Unknown said...

Mandy, in time you will become more comfortable with the realities of the daily risks from cross contamination, surprising ingredients, etc. It's a big adjustment, but with time and experience you'll achieve a sense of "normalcy" again, though different than before, so stay positive. In the meantime, I wanted to give you some hope as my son Bo has a blog about his participation in a peanut allergy desensitization treatment study showing promising results. Also, be sure to check out his list of peanut safe foods that are safe for him to eat to give you some ideas, but make your own decisions and keep reading those food labels.

Bo's Dad
www.askaboutmypeanutallergy.com

Anonymous said...

Mandy,
I am so sorry that you have to deal with so many allergies. We've talked about this before. I find it so funny how different they treat allergies. I just had the twins retested on Monday and Hannah was a 4 to eggs, chicken, pork, tomatoes, wheat and shellfish and a 3 to soybean and we don't even have to stop her from eating them let alone have an epi pen for her. They both were only 2's to peanuts so that was good. I just find it so interesting how things are different. We were hoping their environmental allergies had gotten better but they haven't so we are restarting the shots again. What were your boys number (1, 2, 3, or 4) to their allergies.
Good luck. I can't imagine trying to feed them but I'm sure you'll have the hang of it soon.

love,
Tammy Campany

Stephanie Karnes said...

aww...i'm so sorry you are having to deal with this. i can't imagine. i'm a worrier as it as...and to think i would have to worry about what i feed the kids in so much detail would be difficult. as i've read from your other comments, hopefully you will become at ease with this and the kids will possibly grow out of it. i'll be praying for you!

Anonymous said...

My son is very allergic to peanuts, too. It is so frightening!! We've known now for over two years and it does get easier. Our doctor also told us to give the EpiPen shot regardless of if there is a reaction.

The thing that has helped me the most is to find other PA parents. The Internet makes this possible. Learn from them. Read everything you can. Life will never be quite the same but you will develop a new "normal."

I recently started a blog for PA parents if you are interested at www.peanutallergykid.com. Knowing I can use this to educate others and connect with people like myself has brought me a ton of comfort. My e-mail is on there if you just need someone to vent to. Trust me, I've been there!!

Best of luck,
Robyn

Anonymous said...

Hi Mandy,

My husband just told me about Thomas's peanut allergy this morning! We attend church at Eastside as well, but I have never met you. My oldest son has a life threatening peanut allergy as well, so I fully relate to your situation!

It sounds like you are very well informed on how to change your life styles and what to do in case of an exposure. That is the best defense there is! You must have an amazing allergist- I would love to know who you see.

We discovered my son's peanut allergy (he is also allergic to tree-nuts and eggs) when he was only a year old. It has been about 4.5 years since, and I can tell you that it does get better. There will still be good and bad days. As a mother, it is just overwhelming when encountering all the different social settings that include food!

I have been working off and on with Brandt at Eastside to devise a good plan for the classrooms to keep these food allergy kids safe. We have made some good strides, though not enough to where we could ever let our guard down. It saddens me to think of those families who maybe do not attend church because of the fear that there child might be in danger!

I could write forever in this little comment section, but I would rather talk with you sometime in person. You can visit my food allergy blog at
www.onemomandfoodallergies.wordpress.com

I will keep you and your family in my prayers!

Amy Perry

Anonymous said...

Food allergies are often caused by trace amount of food protein in the vaccines. Not all of the ingredients have to be listed in the package insert for vaccines. Vaccine adjuvants can contain soy oil, peanut oil, sesame oil, etc. The culture media may have had skim milk powder or a beef base. Medicine is not subject to the same laws as food. Many ingredients are protected trade secrets. If your child is the unlucky one to the the trace amount of peanut protein in the vaccine....

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